DOI Pat Quinn Governor Andrew Boron, Director

Insurance Coverage for Autism

Updated May 2012

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Note: This information was developed to provide consumers with general information and guidance about insurance coverages and laws. It is not intended to provide a formal, definitive description or interpretation of Department policy. For specific Department policy on any issue, regulated entities (insurance industry) and interested parties should contact the Department.

For children diagnosed with autism, early intervention and continued treatment is critical. 

Beginning December 12, 2008, all individual and group health insurance policies and HMO contracts were required to abide by the provisions of Public Act 95-1005 (215 ILCS 356z.14). This new Illinois law initially provided coverage for the diagnosis and treatment of autism spectrum disorders for children under 21, establishing an annual benefit of $36,000 for services provided pursuant to this Act. 

The annual benefit is to be increased each year using the Medical Care Component of the U.S Department of Labor consumer price index for all urban consumers (“CPI-U”). The annual benefit amount for 2010 was $37,260; for 2011 was $38,527 and for 2012, it will be $39,721.34 (for those individuals covered by small employer groups which do not provide a mental health benefit and for those individuals covered by individual health insurance).

Here are the basic facts about the new law.

When Will Coverage Under the Law Take Effect?

The law became effective December 12, 2008. Any policy issued, delivered, amended or renewed after this date must include autism coverage required by the law.

Who Must Offer Autism Coverage?

All individual and group health insurance policies and HMO contracts (and voluntary health service organization contracts) must abide by the new law.  Health coverage provided to state, county, and municipal employees (and employees subject to the Schools Code (105 ILCS 5/1-1 et seq.)) must also provide the autism benefits. 

The Autism Law Does Not Apply to:

  • Self-insured, non-public employers.
  • Self-insured health and welfare plans, such as union plans.
  • Insurance policies or trusts issued in other states.

 NOTE: For HMOs, the law does apply to contracts written outside of Illinois if the HMO member is a resident of Illinois and the HMO has established a provider network in Illinois.  To determine if your HMO coverage is required to provide treatment for autism, contact the HMO or check your certificate of coverage. 

The law does not change the autism coverage provided by public health care programs such as FamilyCare and All Kids.  Contact the specific program for more information about its autism coverage. 

Who Is Covered?

Children under the age of 21 who have health coverage through an individual or group policy, as described above, will receive coverage for the diagnosis and treatment of autism spectrum disorders.

What Is Covered?

The new law requires coverage for the diagnosis of autism spectrum disorders.  For individuals diagnosed with an autism spectrum disorder, the new law also requires coverage for the following treatment:

  • Psychiatric care provided by a licensed psychiatrist;
  • Psychological care provided by a licensed psychologist;
  • Habilitative or rehabilitative care (counseling and treatment programs intended to develop, maintain, and restore the functioning of an individual); and
  • Therapeutic care, including behavioral, speech, occupational, and physical therapies addressing the following areas:
    • Self-care and feeding
    • Pragmatic, receptive, and expressive language
    • Cognitive functioning
    • Applied behavioral analysis, intervention, and modification
    • Motor planning
    • Sensory processing

Insurance companies are required to cover all medically necessary care prescribed by a physician, regardless of the type of provider delivering the treatment.

Insurance companies may not impose dollar limits, deductibles or copayments for the diagnosis or treatment of autism which differ from the dollar limits, deductibles or copayments established for physical illness.

What Are the Limits of Coverage Under the New Law?

Large employer groups and small employers who provide mental health coverage must provide benefits for autism in abeyance with the parity standards required under the Mental Health Parity Law.  See http://insurance.illinois.gov/HealthInsurance/mental_hlth.asp

Policies covering small groups (without mental health coverage) and individuals must provide  autism benefits up to an annual limit of $39,721.34 in 2012.  An insurance company may provide coverage beyond this limit, but is not required to do so by this law.

  • Insurance companies are prohibited from limiting the number of visits to a physician or other service provider. 
  • Treatments for conditions not diagnosed as autism will not apply to the $39,721.34 annual limit.

Can Insurers Refuse to Cover Individuals with Autism?

Group health insurance policies are not allowed to refuse enrollment based on health status.

For individual policies, Illinois law currently allows insurance companies to reject an application for health insurance based on health status. However, beginning June 1, 2009, a new Illinois law (Public Act 95-0958) will allow individuals with health insurance policies that provide dependent coverage to elect coverage for dependents up to age 26, regardless of a dependent’s health status.  For more information on this law, please see the Department’s fact sheet on Dependent Coverage (http://insurance.illinois.gov/HealthInsurance/ya_dependent.asp).

Note: If an individual with autism is between the ages of 19 and 21, and neither his/her parents, nor he/she has any health insurance coverage, an insurer may reject his/her application for individual insurance, due to his/her preexisting condition. This will change in 2014 when individuals may no longer be denied coverage based on preexisting conditions.

Is Autism Subject To Pre-Existing Condition Limitations?

Yes. Illinois law allows insurance companies to exclude coverage for pre-existing conditions, including autism, for up to 2 years. Specific exclusion periods vary based on individual circumstances, including the type of policy and an individual’s history of health insurance coverage. For more information, please see the Department’s fact sheet on HIPAA and pre-existing conditions http://insurance.illinois.gov/HealthInsurance/HIPAA_preexisting_cond.asp.  

 

Illinois law governing pre-existing condition limitations for dependent children will change in significant ways due to the new dependent coverage law (P.A. 95-0958).  For more information on these changes, please see the Department’s fact sheet on Dependent Coverage (http://insurance.illinois.gov/HealthInsurance/ya_dependent.asp).

NOTE: Individual and group HMO plans may not impose pre-existing condition exclusions, but may limit coverage of pre-existing conditions through the use of deductibles and co-payments, for a period of up to 12 months.

Can Insurers Deny Claims Based on Medical Necessity?

Like coverage for other conditions, coverage for the treatment of autism is subject to insurance company determinations of medical necessity. An insurance company may deny coverage for a certain treatment if the treatment is not medically necessary or does not result in improved clinical status.

A treatment must be considered medically necessary if it is reasonably expected to:

  • Prevent the onset of an illness, condition, injury, disease or disability;
  • Reduce or ameliorate the physical, mental or developmental effects of an illness, condition, injury, disease or disability; or
  • Help an individual achieve or maintain maximum functional activity in performing daily activities.

If an insurance company denies a claim based on an adverse determination of medical necessity, you may appeal the company’s decision.  The company’s decision must be based on a determination made by a physician with expertise in the most current and effective treatments for autism spectrum disorders.

Appeal procedures and applicable state laws differ for HMOs and insurance companies. For more information, please see the Department’s fact sheet on Medical Necessity (http://insurance.illinois.gov/HealthInsurance/Medical_Necessity.asp).

For related information on Illinois’ law on Habilitative Services for Children, please see Illinois General Assembly - Full Text of Public Act 095-1049, Section 25.

 

For More Information

Call the Department of Insurance Consumer Services Section at (312) 814-2420 or
our Office of Consumer Health Insurance toll free at (877) 527-9431
or visit us on our website at http://insurance.illinois.gov